Jonathan Pitre was one of only 17,000 people to be suffering from his skin condition that made him blister at even the slightest touch.
Epidermolysis Bullosa (EB) is said to be one of the most painful conditions in the world. He said he couldn't even scratch without tearing his skin but wanted to share his story, going public in 2014 with the help of his mother.
Jonathan only had a life expectancy of 25, but passed away Wednesday April 4th at the age of 17.
See his story below:
video via Youtube